“In a few days I will have to bury this beautiful little girl. Months, maybe even weeks, later, I will have to bury my father,” Ally shared on Facebook. “Both of my heroes, gone, within the same year…How could this happen to us? What did any of us do to deserve THIS? Why do they have to leave us? What are we supposed to do? I refuse to believe that there is a reason for this. This world is a terrible place.”

“The nurse who told us earlier that Braylynn’s heart would stop in an hour or two was WRONG. It has been SIX HOURS since then. That nurse was not supposed to give a timeline at all, and her pulse was never faint,” Ally added as an update to the photo she posted of her little girl.

“She was mad because the administration is letting us keep her on the ventilator for as long as we want, so that everyone who is coming here can get here. We will let her go tomorrow after everyone has had the chance to see her one more time.”

But as Braylynn’s heart kept on beating strongly, they decided not to remove her from the ventilator. “We are leaving her on the ventilator until all of the funeral arrangements are made. It may take a few days, because everything is going to be PERFECT for her big day,” her mother wrote. “Until then, she is still with us, still fighting, still strong.”

The emotional mother had a request for other parents that she made in another post. She said, “Everyone please kiss your babies for me tonight and hold them tight…Please don’t take them for granted….Cherish every second you have with them, you may not have as many as you think…”

“I PROMISE YOU, you do not want to feel this feeling, and if you know this feeling… please, tell me how you deal with this, because I am absolutely clueless…” she went on.

Even after hospital staff and doctors told them that the little girl will not make it, the family still held out hope for a miracle. “Not only is Braylynn inspiring people all over the WORLD…earlier today, I spoke with some of the social workers for hospice…They are not willing to give up on her,” her mother wrote.